I was diagnosed with stage 3a Multiple Myeloma in July 2010, at the age of 49. After radiotherapy and six months of chemotherapy, I had a stem cell transplant in December 2010, went into remission but relapsed in September 2012. I had a second stem cell transplant in September 2013 using stem cells from a matched unrelated donor, following more chemotherapy and a donor lymphocyte infusion in November 2015, I am now in complete remission.
I was misdiagnosed on several occasions and was ultimately diagnosed having been referred privately for a MRI scan on my spine.
Experience with Cancer Research
Founder and Chairman of the Oxford Myeloma Support Group
Patient Expert for NICE
Member of the Oxford Hospitals HaemBio Governance Committee
Member of the Bloodwise, Bone Marrow Biopsy working party
Member of the Oxford Hospitals Haematology Patient Panel
Participant in Influenza Hospitalization Study
Participant in RUDY study (rare and undiagnosed diseases study)
Areas of Interest
Mental health of cancer patients
Cancer treatment best practice
Very happy to contribute to projects outside the areas above.